Living with Macular Degeneration: Navigating Daily Life and Finding Support in
Australia
May, 2023
Macular degeneration is a chronic eye disease that affects the macula, a part of the
retina responsible for central vision. It can cause progressive vision loss and make
it difficult to perform everyday tasks. In Australia, macular degeneration is the
leading cause of blindness and vision impairment in people over the age of 50. If you
or someone you love has been diagnosed with macular degeneration, there are strategies
and resources available to help navigate daily life and find support.
Adjusting to Vision Loss
: Vision loss can be difficult to adjust to, but there are many resources
available to help individuals with macular degeneration. In Australia, there are
low vision clinics that specialise in providing support and training for people
with vision impairment. These clinics can provide tools and techniques to help
maximise remaining vision, such as magnification devices, reading aids, and
lighting adjustments. Many of these services are covered by Medicare or private
health insurance.
Modifying Daily Tasks
: Making simple modifications to daily tasks can make a big difference for
individuals with macular degeneration. In Australia, Vision Australia offers
advice and support on modifying daily tasks. They recommend using high contrast
labels for household items, using large print materials, and organising items in
a consistent manner to reduce confusion. Tools such as magnifying glasses,
telescopes, and talking watches can also be useful for maintaining independence
and function.
Utilising Assistive Technology
: There are many technological advancements that can help individuals with
macular degeneration navigate daily life. In Australia, there are many
organisations that offer technology assistance for people with low vision, such
as the Macular Disease Foundation Australia. Devices such as smartphones,
tablets, and computers have built-in accessibility features such as
magnification and text-to-speech capabilities. There are also many specialised
apps and devices designed specifically for people with low vision, such as
voice-activated personal assistants, electronic magnifiers, and screen readers.
Importance of Nutrition
: Nutrition is an important aspect of managing macular degeneration. In
Australia, the Macular Disease Foundation recommends a diet rich in green leafy
vegetables, fish, and fruit to reduce the risk of developing macular
degeneration. These foods contain nutrients such as lutein and zeaxanthin, which
are important for maintaining eye health. Additionally, supplements such as
vitamins C and E, zinc, and omega-3 fatty acids may be recommended by a
healthcare provider to support eye health.
Seeking Support
: Support is essential for anyone living with macular degeneration. In
Australia, there are many resources available to help individuals and families
understand the condition and find support. The Macular Disease Foundation
provides information, resources, and support groups for people with macular
degeneration and their families. Vision Australia also offers counselling
services to help individuals cope with the emotional impact of vision loss.
Maintaining a Positive Outlook
: Finally, maintaining a positive outlook is essential for individuals with
macular degeneration. While the condition can be challenging, it does not have
to define one's life. Focusing on hobbies, interests, and other aspects of life
that bring joy and fulfilment can help individuals maintain a positive outlook
and improve overall well-being.
In conclusion, living with macular degeneration can be challenging, but there are many
strategies and resources available to help individuals navigate daily life and find
support in Australia. Adjusting to vision loss, modifying daily tasks, utilising
assistive technology, prioritising nutrition, seeking support, and maintaining a
positive outlook are all important steps in living a full and meaningful life with
macular degeneration.